Thanks to the huge generosity of our supporters we can support families with children with life limiting conditions in very practical ways. Here is a selection of the support we have given since JHHHT was founded in 2010:
JHHHT has purchased a number of items of sensory and play equipment for life-limited children in the care of the Kaleidoscope Children’s Palliative Care Service.
JHHHT recently purchased a number of sensory items for a young child with a life-limiting condition just outside of London. His family are also hoping to share this equipment with a children’s special needs group that they are working to establish in their area.
In recent months JHHHT has helped to fund a number of trips: we funded a a weekend away for a recently bereaved mother; a holiday for a bereaved family; a trip away for a young carer and her brother; and a trip to Center Parcs for a young lady living with cancer.
JHHHT has recently donated to Keech Children’s Hospice appeal for the cost of a complementary therapist to work with the children the hospice cares for in their own homes.
JHHHT has recently funded six art therapy sessions for a child attending the Chelsea Community Hospital School.
JHHHT has established a transport fund for Keech Hospice and also supported a mobile music therapist affiliated to the Hospice.
JHHHT made a donation of £500 to the Shine Benny Bear appeal to support work with children disabled by spina bifida and hydrocephalus.
JHHHT has supported a family with a child with a life-limiting condition around the birth of a sibling by funding a doula and some cleaning help to relieve some pressure on the family.
We purchased a piece of sensory equipment for a young child with brain damage to be able to enjoy some play time at home.
Made a donation of £2500 to the Shooting Star Appeal for an additional outreach nurse.
JHHHT has purchased a bespoke buggy for a child with Cornelia de Lange syndrome.
JHHHT recently made a donation to a project run by the charity WellChild through its Helping Hands initiative. WellChild Helping Hands is a unique scheme which, with the support of teams of volunteers from local companies and organisations, tackles essential home and garden projects. The scheme runs across the UK and is available to families of seriously ill children and young people. JHHHT assisted with the costs of a garden make-over for Lily Mae. Please see the attached link for more details.
JHHHT continues to fund days out for children with life-limiting conditions from Chailey Heritage School organised by Arundel Castle Cricket Foundation. The children play cricket and visit the Castle and its gardens. It is not easy playing cricket in a wheelchair but the dedication of John Barclay, Annie Atkinson and their team to enable the young people to get as much out of their day as possible is outstanding.
We purchased a video-monitor for a family with a child with cerebral palsy and related breathing difficulties
JHHHT has recently helped a very special little girl celebrate her second birthday. Angela suffers from multiple holes in the heart with non-compaction cardio myopathy. She was tube fed earlier in her life and spent her first birthday and Christmas Day in hospital. Angela’s family wanted her to have a celebration to remember for her second birthday, so JHHHT helped with the costs of a party for all her family and friends.
Financially assisted a family with a child with a terminal illness in order to help them purchase Christmas presents and food.
Provided the funds to enable a child with a rare cancer to travel to Germany with his parents each month for six months in order to receive treatment unavailable in the UK.
Assisted a family with a child with a rare life-limiting syndrome to purchase sensory equipment.
Assisted a family with a child affected by meningitis to travel to Belgium to receive specialist treatment unavailable in the UK.
Set up a fund of £500 per month to assist families in the care of the Kaleidoscope Children’s Palliative Care Service with transport costs for hospice and hospital visits and other outings.
Paid for a terminally ill child and his family to visit a safari park as a last wish.